Thursday, June 11, 2009


Well, I guess an event isn't official until a tee shirt promoting it is created. :-)
Thanks to Mary who is the mastermind behind the great design.
Thanks to the Sweat Shop in Mars for the excellent work and quick turnaround.
Check out all of the different organizations participating in this event. To my knowledge I don't think there has ever been a collaberation of so many rare disease groups in a single event.
To date we have raised over $1300.00 and we have gathered more than 250 messages of support to take to Washington D.C. Many of you are responsible by sponsoring us, or leaving a message.
We thank you!
Keep the rubber side down and always carry a camera.

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