This is the canister that carries a copy of the document that we're taking to D.C. (there are about 20 other copies in the wagon). This document has a letter to House and Senate leaders along with more than 300 messages from rare disease patients.
Joyce has been carrying the canister on her bike the whole way.
Mary helped design this cool thing.
I am left speechess as I read what you are doing (enduring!). Thank you all for all your hard work, may the rest of the way be safe and congratulations to all of you!
ReplyDeleteWith many thanks,
Kathy Savickas
The canister is a great idea and a great way to keep you motivated! Cool! Great job everyone!!
ReplyDelete:) Dusty
You guys are great and we are all proud of what you're doing. Keep up the good work and I'm keeping my fingers crossed for your knee, Ed!
ReplyDeleteKay
Florida
I just happened to remember the saying that applies to bicycling long distances: "Drink before you're thirsty and eat before you're hungry!" You don't want to BONK! You probably know that already.
ReplyDeleteKay
FL