A Call to Action

Here is a copy of the document that we delivered to House and Senate aides. Entitled, "A Call to Action: Impact of Rare Diseases on Patients and Caregivers" it's a collection of 300+ messages. These are messages from patients sharing their story of trying to live with a rare disease.

It's a powerful document. We think and we hope it will be a call to action by the people who read it.